National and Regional Organizations

The Down Syndrome Family Support and Advocacy Group (DSFSAG) is also referred to as Michiana Down Syndrome. The DSFSAG began in the 1980s and has grown from just a few families to a group with over 200 families who enjoy our many programs and events throughout the year. Members of the group are encouraged to take part in the programs offered at area disability resource organizations such as LOGAN, Hannah & Friends and Reins of Life. Grants are available to help members off-set the costs of these programs.

Early Childhood Alliance (ECA) is a non-profit organization serving the early education needs of children across northern Indiana offering parent engagement programs; assistance for families searching for child care; training, coaching, and technical assistance for early childhood professionals; direct early care and education in two accredited learning centers; and working with other service organizations and the business community.

TSA Cares is a helpline that provides travelers with disabilities, medical conditions and other special circumstances additional assistance during the security screening process.

Call 72 hours prior to traveling with questions about screening policies, procedures and what to expect at the security checkpoint.

The International Down Syndrome Coalition (IDSC) is dedicated to helping and advocating for individuals with Down syndrome from conception and throughout life.

This organization provides resources and information for new and expectant parents learning about a diagnosis of Down syndrome: Brighter TomorrowsLettercase, and Down Syndrome Pregnancy. You can also learn more about prenatal testing and available resources through this National Center webinar.

News and information

The Arc of Indiana has produced a documentary film series, “Pathways to Employment,” which celebrates six unique Hoosiers who have not let their developmental disabilities stand in their way of becoming employed. The six short films are designed to share the message that hiring people with developmental disabilities is “Good for Business, Good for People and Good for the Economy.”

Apps for Children with Special Needs (a4cwsn) is committed to helping the families and carers of children with special needs and the wider community of educators and therapists who support them, by producing videos that demonstrate how products designed to educate children and build their life skills really work from a user perspective.

Disability Scoop is the nation’s largest news organization devoted to covering developmental disabilities. With daily coverage of autism, intellectual disability, cerebral palsy, Down syndrome and more, this news source offers timely discussion on the issues that matter to the developmental disability community.

Developed by the National Collaborative on Workforce and Disability for Youth (NCWD/Youth), an organization charged with assisting education and workforce development organizations to improve the successful transition of youth with disabilities into the workplace.

MyChildWithoutLimits.org is an authoritative early intervention resource for families of young children ages 0-5 with developmental delays or disabilities, and professionals looking for a single, trusted, aggregate source of information that relates to their needs and interests.

Contains information about respite providers across Indiana.